Modelos de fluxos assistenciais para linha de cuidado da esclerose lateral amiotrófica na rede pública de saúde do Rio Grande do Norte

Abstract

The complexity of rare diseases, such as Amyotrophic Lateral Sclerosis (ALS), requires specific approaches in public policies and health services, as the typical public health structure focused on common diseases may be inadequate for these cases. Effective care for patients with ALS requires a multidisciplinary approach with collaboration, coordination and transition between professionals and healthcare services. To guarantee quality care, it is essential to organize health services through Lines of Care, which integrate different processes and levels of care through care flows. This research proposed a model of standardized care flows for the ALS Care Line in the public health network of Rio Grande do Norte. The research was structured in three phases: theoretical foundation, collection and analysis of data from patients with ALS in the state, and construction of a model of care flows. The results achieved included the creation of care flows consolidated by specialists, promoting the standardization of the patient's journey and better coordination between health professionals. Furthermore, the developed structure serves as a guide for care coordination, mitigating care gaps and preventing patients from facing difficulties in obtaining treatment.