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Navegando por Autor "Córdova, Vanessa Vega"

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    Patient and public involvement in research: practical experiences from different settings
    (2025-01-08) Longo, Egmar; Chagas, Paula Silva de Carvalho; Magalhães, Adriana Gomes; Faria, Christina Danielli Coelho de Morais; Córdova, Vanessa Vega; Sturgeon, Kate; South, Annabelle; González-Carrasco, Félix; Lennon, Olive; Morris, Christhopher; Cromarty, Ben; Hickey, Julianne; Renias-Zuva, Patience; Horgan, Frances; Cross, Andrea; Thomson, Donna; Putterman, Connie; Micsinszki, Samantha; Mccauley, Dayle; Puspakesuma, Nabila; Lestari, Adinda Dewi; Faza, Achmad; Kusuma, Adytya Arya; Sholehuddin, Jihan Lutfiah Yashmine; Namisango, Eve; Pavarini, Gabriela; Kerasidou, Angeliki; Alvarez-Aguado, Izaskun; Espinosa, Filipe; Spencer, Herbert; Ketelaar, Marjolijn; Campos, Ana Carolina de; Facchin, Ana Carolina Ezequiel; Silva, Rafaela Ramos Anacleto da; Alvim, Michele de Almeida; Alonso, Livia Ferreira Coutinho; Monteiro, Karolinne Souza; Regalado, Isabelly Cristina Rodrigues; Jesus, Caline Cristine De Araujo Ferreira; Peniche, Paula da Cruz; Santana, Camila Araújo Santos; Nascimento, Rayssa Maria do; Saraiva, Beatriz Bicalho; Aquino, Bianca Freitas de Araújo; Leite, Danyelle; Soares, Thalita Henrique Silva
    This e-book was strategically designed and organized to address theeducational needs of Patient and Public Involvement (PPI) inResearch, particularly for researchers in countries like Brazil, wherePPI still needs to be widely incorporated into research projects andactivities. It builds upon our first e-book, Patient and Public Involvement inResearch, which introduced the foundational concepts of involvingpatients and the public in research. In this new e-book, we presentpractical and successful experiences of "how to do PPI," contributedby collaborators from various parts of the world. You will find examples of patient involvement across different healthconditions and public engagement from various age groups inresearch led by countries such as England, Canada, Ireland, and theNetherlands. Additionally, initiatives from low- and middle-incomecountries, including Brazil, Chile, Uganda, and Indonesia, are shared. The growing interest in PPI training highlights the increasingrecognition of the value of collaboration between researchers andthe community. The need for PPI implementation is urgent—not onlyto meet this demand but also to transform the research landscape. Effective integration of PPI potentially will redefine how studies areconducted, ensuring that outcomes are more relevant, impactful,and aligned with the real needs and experiences of patients and thepublic involved.The chapters in this e-book were written bymembers of the public, researchers, clinicians, and students atundergraduate, master’s, and doctoral levels, who share theirexperiences with PPI. We hope this publication inspires readers to delve deeper, initiate,and/or refine the application of PPI in all research projects. Since most collaborators are native English speakers, this e-bookwill be published first in English and subsequently translated intoPortuguese and Spanish to disseminate this content further in Braziland Spanish-speaking countries. Follow us for updates (@epp.brasil)
Repositório Institucional - UFRN Campus Universitário Lagoa NovaCEP 59078-970 Caixa postal 1524 Natal/RN - BrasilUniversidade Federal do Rio Grande do Norte© Copyright 2025. Todos os direitos reservados.
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